News

MS NEWS - the latest updates

• Is it time to revisit the "Types" of MS?
• Connection: MS and Sleep
• WEBINAR: Tech Advances in Progressive MS (Wed July 23 (11am EST)
• Chiropractic Care for MS (Youtube Video)

80% of people with MS experience heat sensitivity.  These tips can help!

20 Ways to Survive the Summer Heat With MS

A former civil rights attorney who lives with MS shares the basics of disability law.  Disability Law Handbook: Know Your Rights

MS Study Opportunity

Maitreyi Madhia, an amazingly talented Frisco, TX is a high school student working on an AP Research Class project. She has chosen to work with people with MS that experience night time muscle spasticity in their legs. 

"My name is Maitreyi Madhira, and I am a high school student from Frisco, Texas, conducting research on sleep-induced spasticity and its impact on stress and cognitive flexibility in individuals with Multiple Sclerosis. This study aims to further our understanding of how sleep-related symptoms may affect the daily cognitive function and quality of life of MS patients, with the ultimate goal of providing insights that could benefit the MS community."

This is her introductory video link. Check it out!:

https://www.loom.com/share/ad9586e2a2d14f04b396b5841c25b104

If you experience this symptom (i.e. night time leg spasticity) and would like to participate in a phone interview with her that would be greatly appreciated. She hopes to have all interviews completed by mid-January. 

If you are able to participate, that would be fantastic and very helpful to her project. 

Email: maitreyi.madhira.956@k12.friscoisd.org

Phone: 469-412-4330

Consent paperwork LINK HERE

More Info HERE

 

Do you have multiple sclerosis and struggle with cognitive problems?

If so, you may want to consider participating in the research study

What is this research study about?

We want to test a cognitive rehabilitation intervention (Memory Attention & Problem Solving Skills) in persons with MS - MAPSS–MS) in a virtual – ALL ONLINE - format. We developed and tested this effective intervention for “in person” and we now want to see if it will work as well in a virtual format.

MAPSS - MS Flyer

What will you do?

If you qualify for the study and choose to participate, you will;

• Take surveys in cognitive test online at three different time points (before the intervention, immediately after the intervention, and six weeks after the intervention)
• Attend eight online classes about strategies you can use to improve your cognition
• Receive up to $100 in gift cards for being in the study

Interested?

Please call or email Alexa Stuifbergen, PhD, RN

The University of Texas at Austin School of Nursing

1-800-687-8010

Email: maxhealth@mail.nur.utexas.edu

BYLSG North Texas Members

Since heat is a concern for many of our MS friends, I wanted to share a summer special we are offering with you in hopes that you will participate.

Julie is an online yoga teacher with Mindset Fitness Yoga who offers LIVE VIRTUAL classes: mat yoga class at 9 am, and chair yoga at 11 am; these are live virtual classes with recordings available afterward. She has also been incorporating some new techniques she's learned, so I am eager to see how it helps people. 

This special is one price – $129 – for the entirety of the membership, which runs from date of sign up to August 31st. The goal is get or keep people moving with the lengthening & strengthening yoga provides, all while staying inside and COOL!

There is no need for those who sign up to cancel or worry about renewal billing - we really just want to offer movement that can be done safely, consistently, and with a like-minded community during the summer months. 

Attached is a flyer about the program and a QR Code to register or CLICK HERE or here https://mindsetfitnessandyoga.com/events

Mindset Fitness Yoga - Adaptive Wellness - Summer Online Special 2024.pdf

JENNY DAVIS

MINDSET Fitness & Yoga

Adaptive Wellness

ENGAGE. EMPOWER. IMPROVE.

JENNY@MINDSETFITNESSANDYOGA.COM

We are looking for patients with progressive MS to try a new remyelinating therapy. Complete details are below. 

31P-MRS Imaging to Assess the Effects of CNM-Au8 on Impaired Neuronal Redox State in Multiple Sclerosis. - Full Text View - ClinicalTrials.gov

REPAir Study - Authorization_to_Receive_External_Protected_Health_Information_-_Oct_2019 (1).pdf

REPair Study - STAMPED STU2019-0992 Sguigna FormE-Consent Mod_13 03-04-23 (1).pdf

Peter Sguigna, MD
Assistant Professor
Multiple Sclerosis & Neuroimmunology Division
Department of Neurology
University of Texas Southwestern Medical Center

Don't let the holidays get the best of you or your MS.  This article has practical tips to help you truly enjoy this holiday season:

15 Tips for Better Holidays with Multiple Sclerosis (bezzyms.com)

 

This is a recorded webinar from the National MS Society on the new Drug Pricing Law which goes into effect next year.  It is very helpful with a lot of good information.  

You can view a recording of the webinar here: https://nmss.zoom.us/rec/share/KI6ASXKW2HjIMY6wN0vEy7duvOWEsUb5S1ktneHj16EffQObF2oAHXOWnyHZQoac.mUZQCKq30D22IC4w

Additional Resources:
Contact MS Navigators: https://www.nationalmssociety.org/Resources-Support/Find-Support/Ask-an-MS-Navigator
Timeline of the Inflation Reduction Act implementation: https://bit.ly/3wxCzUR
Learn more about Access to MS Medications: www.nationalmssociety.org/accessmeds

Thank You, Paula, for sharing this information

UTIs and Multiple Sclerosis: The Importance of Prompt Diagnosis and Treatment | Everyday Health