News

  • Sat, April 09, 2022 9:20 AM | Kimberly K (Administrator)

    Study Provides Strongest Evidence Yet for the Role of Epstein-Barr Virus in Triggering Multiple Sclerosis

    NMSS Epstein Barr

  • Tue, January 12, 2021 1:10 PM | Kimberly K (Administrator)

    Dear Advocacy Group,

    Sanofi Genzyme remains committed to educating and supporting people living with MS and their care partners during this time. One way we continue to educate and support is through our live, virtual webinars. These webinars are hosted by MS experts and cover a variety of topics such as, what makes your relapsing MS unique, how to discover the power of choice in managing your RMS and information about a potential treatment option.

    Attached is a flyer with the live, weekly Webinar information. If you’d like to do so, please feel free to provide this flyer to your MS patients, their care partners or advocacy group members.

    Registration for the Live Webinars is simple. If someone wishes to register, they can visit RMSWebinars.com and select the date that works best for them.

    We thank you for your support as we work together to meet the needs of MS patients.

    Best regards,

    Heather Roth



    Heather Roth

    Executive Area Business Manager

    Multiple Sclerosis

    Sanofi-Genzyme

    Heather.roth@sanofi.com

    972-816-5683


    JOIN US FOR A FREE LIVE WEBINAR WITH Q&A AND POLLING

    Thursday January 14 06:00 PM CST

    Speaker: Daniel Long, DO 


    Tuesday January 19 05:00 PM CST

    Speaker:  James Winkley, MD


    Wednesday January 27 11:00 AM CST

    Speaker:  Donald Negroski, MD



    FLYER & RSVP info

    AUB Unbranded Digital Invite MeFirst Jan 2021.pdf


  • Wed, November 18, 2020 7:14 PM | Kimberly K (Administrator)

    This is a follow-up on November 14, 2020 Monthly Group Meeting on "Medical Insurance 101".   

    2020-11 Comparing Health Plan Options and Prescription Cost Help for People with MS.pdf

    Medicare

    Ways to get Medicare Coverage

    ·      Questions to ask when shopping for a Medicare Advantage Plan      


    Things to consider when choosing a Part D Plan

    Cost Help

    Other Types of Coverage

    • Comparing Health Plan Options and Prescription Cost Help for People with MS – the most recent version hasn’t yet been updated on our website so I’ve attached a copy.

    SSDI Application Information

    Our MS Navigator and Benefits & Employment Support Teams are happy to help if you still have questions after you’ve explored the resources in this message. To request a referral to the Benefits & Employment Support Team or to get help with other MS-related needs, please don’t hesitate to contact us Monday-Friday at 1-800-344-4867 (7am-5pm, MST), or email us at ContactUsNMSS@nmss.org.  

    If I’ve missed anything or if you have any follow up questions (about this content or anything else related to MS) you’re welcome to reach out to me (robin.larue@nmss.org) or to the MS Navigator team at 1-800-344-4867, option 1.

    Warm Regards,

    Robin LaRue, M.A. Ed

    MS Navigator

    I am out of the office on Thursdays and Fridays

    National Multiple Sclerosis Society
    900 S. Broadway 2nd Floor
    Denver, CO 80209


  • Sun, November 08, 2020 5:59 PM | Kimberly K (Administrator)

    NMSS Update:

    Veteran Resources

    From Doris Lill, a Director with our Healthcare Access team.  Doris shared updates about services and resources available for veterans, as well as information about how the Society is partnering with the VA to provide support to those living with MS.  Please feel free to reach out to Doris at Doris.Lill@nmss.org if you or a group member has any questions about veteran’s resources or services.  In addition, I’ve attached a document that highlights specific resources available for veterans.  Veteran_flyer 2020-11.pdf

    MS Connections

    You can always access call recordings and slide decks on our Connections Program Volunteers site.  These can be great resources to share on your upcoming virtual meetings.  Older calls can now be accessed on our call archive site.  We’ll be changing our drop-in call cadence to every other week after November 5th.  Stay tuned for November topics.

    In the meantime, please don’t hesitate to reach out to me or our support team at peerconnections@nmss.org with any questions.

    With joy,

    Hannah


    Information to send to your group:

    Ask an MS Expert

    This weekly webinar series is an opportunity for anyone to learn more about multiple sclerosis from top MS experts.

    MS Treatment and Research

    Friday, November 6, 2020

                    10:00 am PT / 11:00 am MT / 12:00pm CT / 1:00pm ET

                    nationalMSsociety.org/MSexpert, Facebook Live, and YouTube Live

    Please click here to register

    Over the past few months, we have enjoyed connecting with all of our Self-Help Group Leaders and have learned more about the support and resources that are important to you.  Did you know that many of the topics you would like more information about have been covered by MS experts during our weekly Ask an MS Expert series? The Society has offered these weekly webinars that feature different MS experts from around the county, speaking about a new topic each week. Our YouTube channel has all 36 webinars recordings, and you can find them right here.  Access whatever topics interest you and share with your group members for your next discussion!


    Café con Leche

    Conversation and Support in Spanish for People Living with Multiple Sclerosis

    The National MS Society wants to make sure that everyone affected by MS can connect with others, feel supported, and receive reliable information regardless of where they are. In this opportunity, we invite the Hispanic/Latino MS community to join us for the video conference/phone call Café con Leche group.

    Meetings are the 2nd Tuesday of each month at 4:00 p.m. ET.  For more information or to register call 1-800-344-4867, option 3, or nationalMSsociety.org/Espanol


    International Progressive MS Alliance - Speeding Treatments for Progressive MS Webcast

    Join leading international MS experts in a discussion about research breakthroughs that could accelerate new treatments for people with progressive MS.  The International Progressive MS Alliance global webcast will explore how artificial intelligence in MRIs and blood tests could mark a step-change for people with progressive MS.

    For more information and to register, visit  www.msif.org/progressiveMSwebcast

    Thursday, November 12, 2020 at 11:30 EST.


    Hannah Taylor

    Manager, Program Implementation & Engagement

    Empathy | Connectedness | Relator | Input | Intellection

    National Multiple Sclerosis Society
    Tel: +1 210 694 3249

    Ask the Expert – Join us every Friday at 1 p.m. EST for a conversation with leading experts https://www.nationalmssociety.org/MSExpert

    Connect to an MS Navigator — They are highly skilled, compassionate professionals who can connect you to the information, resources and support needed. These supportive partners help navigate the challenges of MS unique to each situation.  To connect with an MS Navigator call 1-800-344-4867 or email.


  • Mon, July 27, 2020 8:41 AM | Kimberly K (Administrator)

    https://youtu.be/eblsdW-h2eo  

    This week’s “Ask MS expert“ was really good - mood, stress & cognition.  

    The doctor covered tips & tricks like- 1) Exercise.  2)Diet for MS. 3)Schedule worry.  4) Use a “to do list” for strategies to improve mood, discussions with doctors, medications, etc.  


  • Sun, June 14, 2020 7:00 PM | Kimberly K (Administrator)

    Karen Kinman, Ph.D., RN, LMFT 

    www.therapyforhealing.com  Ph:  682-552-6191

    Presentation Outline:
    • Strategies in healthy coping, stress management, and self-care
    • Depression & Anxiety
    • Integrative Mental Health: what does this mean? How can it help me?
    • Immune System & MS & Depression
    • Inflammation
    • Nutrition/diet
    • Resources

    ´ Crisis Hotline:    Text HOME to 741-741

    ´ Nat’l Suicide Prevention Hotline: 1-800-273-TALK (8255)

    ´ Veterans Crisis Line: 1-800-273-TALK (8255)

    ´ Nat’l Domestic Violence Hotline: 1-800-799-SAFE (7233)

    ´ Corona virus:  CDC    https://www.coronavirus.gov

    ´  NIH     www.nih.gov/coronavirus

    ´ Pub med, medline

    ´ Seniorsource.org

    ´ animeforhumanity.organimeforhumanity.org

    ´ Mayo Clinic:  www.mayoclinic.org/patient-care-and-health-information

    ´ James Lake, MD   integrative mental health


  • Fri, May 22, 2020 10:00 AM | Kimberly K (Administrator)

    People with disabilities may face unique challenges regarding their independence. Although many take driving for granted, those with disabilities can require vehicle modifications in order to make driving possible. Unfortunately, the cost of these modifications may put them out of reach for many.

    We created a guide to help your readers consider their options:

    https://www.thesimpledollar.com/insurance/auto/states-guide-to-car-modifications-for-people-with-disabilities/

    Our guide includes:

    • A chart with state by state resources for grants and other resources on how to pay for vehicle modifications 
    • A list with the average cost of the most common vehicle modifications
    • Information on additional coverage to accommodate vehicle modifications 

    Would you be willing to add this as an additional resource for cor.net?

    Wishing you good health in these challenging times,

    Ivey O'Neal
    The Simple Dollar

    1101 Red Ventures Dr, Fort Mill, SC 29707

    ivey@thesimpledollar.com


  • Sat, May 09, 2020 9:37 AM | Kimberly K (Administrator)

    BYLSG Members

    For those wishing to continue their PiYo exercises, please refer to Simin's FaceBook for numerous video classes to choose from:.

    https://www.facebook.com/simin.mashreghiziaie.


    Stay healthy!


BYLSG  (But You Look So Good) North Dallas
bylsgnorthdallas@gmail.com
Self-Help Group of the NMSS, a 501(c)3 non-profit organization.  https://www.nationalmssociety.org

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